Yesterday was a beautiful, sparkly day, a cold day, the day before the Pope resigned, the Lunar New Year. Yesterday I ran 6 miles, programmed my first website, made lasagne with Ryan. I thought about the blood in my veins and how, after twelve years with diabetes, I still see it - every day. And how trivial that seems. And how funny it is to get used to adhesives on your stomach. And how, over time, you grow to really love those little sticky patches, because of what they do for you. And how tiresome this narrative must be, the preexisting-conditioners-speak-out-story, the let-me-show-you-how-tough-I-am story.*
I saw a new endocrinologist for the first time in several years. While reviewing my blood sugar charts he said something about a common trend toward hyperglycemia after meals, and completely without prompt, I burst into tears. He waited a beat and then said, "I certainly hope this isn't causing you psychological stress."
There are a lot of ways to interpret that. What this man doesn't know is that I am a master at interpreting things a thousand different ways. It is, at times, my job to do just that. I looked at him and said, "This shit is frustrating." Because the truth of it is, no matter how boring that narrative gets, it's there for you like any terrible reality tv show or late night drama. Yes, the last twelve years have been amazing. I have gotten to travel the world and study things I care about and work with really interesting people and live in beautiful places and spend time with my family and friends and fall in love and go on adventures. And on a good number of those days I've been downing Gatorade on my bike or waking up shaking in the middle of the night or taking an injection because my site doesn't work. I imagine other people's bodies as these machines that tick involuntarily; mine is a watch that must be wound, every two days, using a 7cm needle.
Know that this is not a call for sympathy. This is an acknowledgement that days can go by and years can pass and we can accomplish great things while still honoring, for one day, that nine or ten or eleven or twelve years ago our lives were unaffected in a way that they no longer are. That this is, for better or worse, a reality, one that occasionally causes stress, but one full of awe, and honesty, and true, real love.
So that was yesterday.
*I want to mention, too, that when other people living with, well, whatever it is we humans live with, share their stories about their own conditions, I feel a kinship and compassion so strong that I know this narrative will always have its place.
2.10.12
Evidence of a diabetic life well lived:
The blue needles are used to pull insulin from the vial into pump reservoirs. The black needles are the ones that go beneath the skin. The hypodermic needles are for the occasions when a pump site might be faulty.
I filled this box in about four months.
It's funny, the things you get used to, after eleven years.
2.10.01
Every year it's a bit different.
The first year, it was tragic. Every detail of February 10 was etched so clearly in my mind: the hard calluses on my palms from rowing competitions, the uncanny thirst in the back of my throat, that sinking feeling that I'd be doomed to adolescence forever. There were details that I'd attributed as somehow significant: the tulip painting on the hospital wall, the blue lights of the Tower Theatre mirroring the scene from the Sacramento River, the haunting chords of a Dave Matthews song. Everything is epic at 16 years old. What boys think is important. What teachers say could influence career choices. And what a body feels like--there are few things that dictate puberty more than the clash of control and instinct.
The second year, the memory was no less vivid. The illusion of control followed me to a more adult life--my freshman year of college. I circled the Lagoon that day, watching the gulls hem the coastline, realizing with a sudden finality that growing up meant taking ownership over imperfect organs.
Every year it changes. Those first three years, February seemed so mournful. I wrote poems to cells. I was still angry. I explained everything all the time to anyone who so much as blinked in my direction.
The fourth year I was abroad. That was the year I decided an anniversary didn't have to be sad. We landed on Tenerife, in the Canary Islands, at midnight, and the minute it was February 10, I felt something new: defiance, in the form of optimism. And then I got dressed for Carnaval and learned how to relax in Spanish.
This eighth year, February 10 means something entirely different. February 10 is pancreas day, Julia day, adulthood day. I feel extraordinarily lucky. Not everyone can pinpoint the loss of idealism to one specific day. There are so few moments of perfect drama in our lives--of actual, novel-worthy frustration, unembellished, random crises of faith. For so many people, personal tragedy is not something so easily calculated: how does one quantify depression? Or the injustice of homophobia? Of lost opportunity to some invisible, imperfect law of human nature?
Mine is an unfairness I can chart, plot, and review. Mine is a plague of minimal pain. Mine is never a solitary journey. Mine is the confusion that actual life plots for all of us--the rearrangement of meals, the reminder that nobody is invincible, that there are consequences to every decision. Diabetes has always been a lesson in opportunity cost and effect, and while I never really appreciated my high school economics class, these things are more easily understood when one measures them in the form of a finger prick.
Eight years later, I no longer wonder who I'd be without diabetes. I'd be someone else, with some other Trojan horse, accomplishing other things. It doesn't matter. I am who I am just as a tree is just a tree, and a dog is just a dog. There is comfort to be found in identifying as something or someone. I am a diabetic, but I am also a woman, and a professional, a friend, a daughter, a sister, a person with opinions and aspirations. And, at times, catapulting blood sugar.
February 10. I look forward to the year that there are even more important anniversaries than this one.
The first year, it was tragic. Every detail of February 10 was etched so clearly in my mind: the hard calluses on my palms from rowing competitions, the uncanny thirst in the back of my throat, that sinking feeling that I'd be doomed to adolescence forever. There were details that I'd attributed as somehow significant: the tulip painting on the hospital wall, the blue lights of the Tower Theatre mirroring the scene from the Sacramento River, the haunting chords of a Dave Matthews song. Everything is epic at 16 years old. What boys think is important. What teachers say could influence career choices. And what a body feels like--there are few things that dictate puberty more than the clash of control and instinct.
The second year, the memory was no less vivid. The illusion of control followed me to a more adult life--my freshman year of college. I circled the Lagoon that day, watching the gulls hem the coastline, realizing with a sudden finality that growing up meant taking ownership over imperfect organs.
Every year it changes. Those first three years, February seemed so mournful. I wrote poems to cells. I was still angry. I explained everything all the time to anyone who so much as blinked in my direction.
The fourth year I was abroad. That was the year I decided an anniversary didn't have to be sad. We landed on Tenerife, in the Canary Islands, at midnight, and the minute it was February 10, I felt something new: defiance, in the form of optimism. And then I got dressed for Carnaval and learned how to relax in Spanish.
This eighth year, February 10 means something entirely different. February 10 is pancreas day, Julia day, adulthood day. I feel extraordinarily lucky. Not everyone can pinpoint the loss of idealism to one specific day. There are so few moments of perfect drama in our lives--of actual, novel-worthy frustration, unembellished, random crises of faith. For so many people, personal tragedy is not something so easily calculated: how does one quantify depression? Or the injustice of homophobia? Of lost opportunity to some invisible, imperfect law of human nature?
Mine is an unfairness I can chart, plot, and review. Mine is a plague of minimal pain. Mine is never a solitary journey. Mine is the confusion that actual life plots for all of us--the rearrangement of meals, the reminder that nobody is invincible, that there are consequences to every decision. Diabetes has always been a lesson in opportunity cost and effect, and while I never really appreciated my high school economics class, these things are more easily understood when one measures them in the form of a finger prick.
Eight years later, I no longer wonder who I'd be without diabetes. I'd be someone else, with some other Trojan horse, accomplishing other things. It doesn't matter. I am who I am just as a tree is just a tree, and a dog is just a dog. There is comfort to be found in identifying as something or someone. I am a diabetic, but I am also a woman, and a professional, a friend, a daughter, a sister, a person with opinions and aspirations. And, at times, catapulting blood sugar.
February 10. I look forward to the year that there are even more important anniversaries than this one.