2.10.13
Yesterday was a beautiful, sparkly day, a cold day, the day before the Pope resigned, the Lunar New Year. Yesterday I ran 6 miles, programmed my first website, made lasagne with Ryan. I thought about the blood in my veins and how, after twelve years with diabetes, I still see it - every day. And how trivial that seems. And how funny it is to get used to adhesives on your stomach. And how, over time, you grow to really love those little sticky patches, because of what they do for you. And how tiresome this narrative must be, the preexisting-conditioners-speak-out-story, the let-me-show-you-how-tough-I-am story.*
I saw a new endocrinologist for the first time in several years. While reviewing my blood sugar charts he said something about a common trend toward hyperglycemia after meals, and completely without prompt, I burst into tears. He waited a beat and then said, "I certainly hope this isn't causing you psychological stress."
There are a lot of ways to interpret that. What this man doesn't know is that I am a master at interpreting things a thousand different ways. It is, at times, my job to do just that. I looked at him and said, "This shit is frustrating." Because the truth of it is, no matter how boring that narrative gets, it's there for you like any terrible reality tv show or late night drama. Yes, the last twelve years have been amazing. I have gotten to travel the world and study things I care about and work with really interesting people and live in beautiful places and spend time with my family and friends and fall in love and go on adventures. And on a good number of those days I've been downing Gatorade on my bike or waking up shaking in the middle of the night or taking an injection because my site doesn't work. I imagine other people's bodies as these machines that tick involuntarily; mine is a watch that must be wound, every two days, using a 7cm needle.
Know that this is not a call for sympathy. This is an acknowledgement that days can go by and years can pass and we can accomplish great things while still honoring, for one day, that nine or ten or eleven or twelve years ago our lives were unaffected in a way that they no longer are. That this is, for better or worse, a reality, one that occasionally causes stress, but one full of awe, and honesty, and true, real love.
So that was yesterday.
*I want to mention, too, that when other people living with, well, whatever it is we humans live with, share their stories about their own conditions, I feel a kinship and compassion so strong that I know this narrative will always have its place.
Dudebros and red pumps
I bought my first bridal magazine yesterday. I couldn't help myself; I had to editorialize a little. This is how the intro paragraph to my wedding would read:
The perfectdazzling white gownlacey vintage short dress, hair and make-up that make her feel every inch aprincessan awesome badass woman, from the tip of hertiaracrown of flowers to the toes of herbejeweled slippersred pumps,a fabulous grand ballrooman open night sky, and of course a handsomeprinceresponsible yet spontaneous dudebro. It's a timeless dream for most women, as it should be.
I've never been one for fairy tales--it seems to me that a wedding is about celebrating the raw humanity that is real life, real love, and real people. That, and sexy dudebros, and an entire happy crew and family and friends, and red pumps.
The eternal flame
UC Santa Barbara has a monument on campus entitled the Eternal Flame. It is a small sculpture located on the lawn between buildings, and in its triangular center it burns, as they say, incessantly. Our final week living together in the dorms, my friend Graham convinced a group of us to sneak out to the Eternal Flame after dark and - well - roast marshmallows.
This was the kind of thing we did. This is the kind of thing I would still do.
The places we go
Tonight I drove I-280 south from San Francisco on my way back from a raucous afternoon at the Golden Gate Races. It was one of those winter days that I think only happen in California. There really is only one word for it, that light: nostalgic.
The drive tonight reminded me of a summer night in Davis last summer, the night before I moved to San Jose.
I had completed grad school a mere 48 hours earlier and spent that entire weekend fitting two years’ worth of work into the back of my 2002 Volvo. It was one of those summer days where the sun goes on forever. When I was a child, playing outside on nights like that, I'd imagine that on the other side of the Berryessa Hills, Paul Bunyan would be standing there with his ox and a hatchet, lifting the sun above the hills. I was always drawn to follow that horizon, if anything to find him standing there, keeping the night at bay.
When I don't know where to go on summer nights in Davis I go to Fairfield School. That hot night last summer was no different. I got in my car and drove out on the county roads west of town.
There was an unintentional poetry to it; returning, almost without thought, to the place where I first learned to learn, the very first school that meant anything to me, just hours after completing an advanced degree. When I go out there among the oak trees, I still think of Debbie Clark, the second grade teacher who let me be shy, the woman who agreed to be my pen pal, even though we lived only blocks from each other. She had two beautiful grown daughters but had room in her heart for a dorky shy seven-year-old; this was the same woman who, a few years later, was diagnosed with breast cancer. I was in seventh grade and I still remember her dying wish: to be surrounded in flowers. Someone, I don't know who, organized a group of Fairfield students and parents, and the group of us gathered to rototill her new backyard, and all that spring we trimmed rosebushes and watered her lawn. A few months later she succumbed to breast cancer at the young age of 45. The complete lack of reason for it all - the irrationality of it, seeing a good person get sick, left an impression that remains with me today.
I go out to Fairfield and I remember her still, swishing between the desks in those long elementary-school-teacher-dresses, the ones with the alphabet on them, or flowers, and I remember the art of wonder. How that little two-room brick schoolhouse is a place that fills me with wonder, even now. How nostalgia can be different from sentimentality; how you know when a place is meaningful when your feet -- or your wheels -- simply lead you there, on instinct.
There are no Fairfields on 280-South, but there are these luscious woods in every shade of green, and there is this quality of light that shivers in the afternoon. There is Half Moon Bay. Sometimes, if you are lucky, as I was today, there are great white egrets that straddle the freeway divider, standing on one leg without a care in the world, their oblong heads almost invisible if they stand at the right angle.
Sometimes, if you squint your eyes, you can make out Paul Bunyan standing just beyond those hills, propping them up with his hatchet.
one hundred words: Takeoff
What happens when we bring the dog
The miracle of the latkes, 20 years later
My mom has written before about Hannukkah miracles. The most famous one took place about 20 years ago, when, in the midst of one of her renowned block-wide latke parties, her food processor broke down halfway through a batch of her famous potato pancakes. My dad disappeared into the garage while she and some of her friends huddled around the machine, patting it as if it were a dead dog, murmuring faint praise. I couldn't have been more than seven or eight and I was absorbed in a game of dreidel, which in those days we always played on the linoleum floor, watching to be sure that the tops never stuck in the cracks between tile, and when I looked up again my dad had surprised us all by sneaking in amongst all the neighbors, cradling a half-wrapped, brand-new food processor still in its box.
"I was going to give you this for Christmas," he said, and before I could really understand what had happened, my mom had crumpled into him, hugging this most O. Henry of gifts. Before long the new machine was up and whirring, the kitchen buzzing with laughter and frying oil.
This is one of my mother's signature stories. I've since learned the subtlety of it; the careful way my parents have navigated their interfaith relationship. This weekend I was reminded, yet again, of how much those gestures mean.
Ryan and I decided early last week that we wanted to ring in Hannukkah somehow this year, and so we invited a few friends over for dinner and started planning recipes. My parents were out of town and I didn't feel right making latkes without my mom.
"But we can't have a Hannukkah party without latkes," Ryan said.
"It isn't the same without my mom's recipe," I said. "Besides, we don't have a food processor, so..."
The truth was, I was terrified of making latkes. Some part of me had always been terrified of all that hot oil, of laboring over a soaking tub of scrubbed potatoes, of straining the batter through towels, of getting stuck in the kitchen above the hot stove. Some part of Ryan still quietly persisted, bringing it up again when we went to the flea market to get ingredients. We bought fresh vegetables and spices and two pounds of potatoes...just in case. And then we passed a small stall selling kitchen equipment, where an entire row of used Cuisinart sat, their plugs trailing off the table.
"How much?" Ryan asked, picking each one up, spinning their blades with his thumb and forefinger. "Can you plug this in so we can see it work?"
Half an hour later, we walked back to the car with our arms laden, the new toy swinging in our farmer's market bag.
That night we bustled around our small kitchen, chopping vegetables, layering lasagne, grilling chicken, peeling potatoes. I'll never forget the feeling of slipping those first few potatoes into the machine, watching as the blade splintered carbohydrate into a fine batter. It awakened something in me that I'd left on my parents' tile floor. And when it came time to drop the first few pancakes onto the frying pan, something small and important shifted: here I was, making latkes, without my mother, for the first time. And when our guests came, and ate the first batch, I leapt up and prepared the second batch, enjoying the hustle of the hot hot kitchen, enjoying the company of my friend Tiffany as she leaned against the fridge, catching me up on her life while the pancakes lapped up oil. I was reminded of my mother in one of her famous aprons, her hair bunched around her face as the heat rose ever higher, one hand on her hip, one hand on the spatula as she stood by the pan, chatting with neighbors and friends.
What was it, that feeling? Was it pride? Was it love? Was it awe? The feeling stayed with me until long after the guests had left and the dishes were washed. It was the sensation that a tradition had been passed down and I was there to honor it. And the realization that I wouldn't have even tried if it hadn't been for this goyische boy with blue eyes, the one who an hour before the guests came drove to Lowe's and bought holiday lights for the patio--"blue and white," he'd said, "for Hannukkah."
one hundred word story #101
Isn't it ironic
My childhood: a study in unironic tie-dye.
Remember when irony wasn't a thing? Or if it was a thing, it was a dramatic thing? Saved only for moments of sheer theatricality. So far as I know, it didn't come in the form of skinny jeans and mustaches and vinyl and expensive espresso. Somewhere along the way, irony came to replace nostalgia and sentimentality. It was a way of recalling the past by making fun of it. It's something we all do, almost mechanically.
I recall an old friend from abroad whose layers of sarcasm were piled so thick that I could rarely understand what he was saying. There were jokes, but they were dark, and there were cutting, knowing observations, and there was bitterness, and there was anger, and at the very heart of it all, a kind of sadness so entirely swaddled in emotion that it would spill out at the most unexpected moments, little bursts of honesty that when unfurled, would wipe away all the bullshit. It was those moments that made him my friend. There was a brilliance to the way he cloaked it all in, an irony to his self-deprecation and occasional malevolence, and yet it was an irony I have yet to truly understand.
I wonder, though, if things in him had settled, and if all the caustic one-liners were swept away, if we had been better friends.
I've written before that irony is a thing that emerged in my generation in response to eight years of George W. Bush. I still believe this, and feel within me a deep-seated sense of political unrest whenever I think of those eight long years. Perhaps because that era is over, and because my personal life has achieved some semblance of stability, I don't burn with that glimmer of political dramatics the way I once did.
It's still curious, then, that during that period irony transformed into a cultural aesthetic, one that can be spotted cycling through San Francisco's Mission District on a fixie, sipping a four-dollar espresso, sporting expensive jeans with carefully-torn holes on the knees. But I could be wrong; surely I am. Some of them wear tie-dye.
The wild rumpus
"When you're in your twenties, you are so worried what everyone else thinks about you," he said. "When you're in your thirties, you don't care what they think. When you're in your forties, you realize they were never thinking about you at all."
I've heard versions of this over the years, from teachers, writers, friends. But tonight I heard it differently. I thought of how much I long not only for the impulse to write, but the knowledge that I have something actual to say. I spend my days reading and re-reading and editing and revising technical texts that have the practical strength to make things happen, the same way a recipe writer jots down precise instructions for other chefs to follow. But when it comes time to write my own things, to spoon up my own emotional grit, I keep feeling like I'm coming up empty.
I know why it's happening, too. It is the obsession that writers sometimes have that someone is already looking over your shoulder, that each word must impress, that an idea must be fully formed before it is worth, well, anything. When I was a teenager, I'd sneak into my parents' den to write on our family computer, and anytime someone opened the door, I'd growl. They'd never be there to snoop; half the time they wouldn't even notice I was writing until I'd snapped in my chair. That's the great paradox about writing; nobody cares that you are a writer until you have written, and why shouldn't they? Few people are as impressed by someone training for a marathon as they are by someone who has just completed one, in record time, no less.
Perhaps the greatest irony of all is that all I seem to write about these days is how much I want to write.
It's similar to the desire for immersion. You want to understand the words, the cultural cues, the accents, the subtlety of exchange, before you can even conjugate the verbs. The only way to learn is to let yourself be helpless; to hang in limbo, not knowing if what you're saying is absolute crap, or culturally insensitive, or idiotic, or just plain unintelligible, until the day comes that you actually stop thinking about the words themselves, and instead you focus on the meaning behind them.
And that is what I learned (or, rather, learned again) from Stephen Elliott.
The gospel of stories
--Joseph Anton, Salman Rushdie
Doc in a Box
It was just past 11am, Sunday, a sunny, beautiful day. They were leaning against the railing that separated the sidewalk from the train tracks, a middle-aged woman with a sallow face and a similarly-aged man in a polo shirt.
"Are you from around here?" the woman asked. Her face was weirdly calm. She was holding her forearm at an odd angle.
"Uh," we said, but we stopped walking.
"I think I might have broken my arm," she said. Some part of me had instinctively avoided looking down. There, in the middle of her forearm, was an uneven ridge, three or four inches long, purple and swollen. It looked like an eggplant was sprouting from her arm.
"Our ride's coming," she said, nodding back to the street. Somehow I doubted that this was true. "Can you tell me where there's a doc-in-a-box?"
I didn't really know where to direct her--what exactly is a doc-in-a-box? I half expected to point to a dumpster and see a man with a stethoscope emerge. So many questions. I directed her to the clinic across the way and she smiled and nodded, cradling her arm closer to her chest.
"Have a nice day," she said.
We kept walking, and the further we got from her, the more I kicked myself for not getting the full story. They were positioned just so on the train tracks--maybe they had hitched a ride on the Starlight and she'd barrel-rolled out the side? And what had happened to their mysterious driver? Had someone dropped them off on one street, and they'd somehow gotten ensnared in some urban imbroglio by the next street? I could just imagine their driver, a flustered familiar, maybe a niece or nephew, rolling up alongside their aunt and uncle and sputtering, "But I JUST dropped you off!"
Michelle was with us and she pointed out that their clothes were not too soiled; perhaps they had not jumped the train but rather been jumped by someone. "That arm was broken hours ago," she said. "They had to sleep it off, whatever it was."
All the potential explanations swirled in my head for the rest of the day. It was Choose-Your-Own-Adventure reversing in my mind. Surely there was some simple explanation for it; she probably just stepped off the curb wrong. There was something to the very ordinariness of it all; as if this was the kind of thing one did on any given Sunday--leaned casually against a fence along the train tracks, nursing an arm the size and shape of a small eggplant.
By the time we had walked back at the end of lunch, the couple was gone. It gave me pause. Maybe their ride had come. Maybe they found a box with a doc in it.
Or maybe, they'd hitched a ride on the next train out of town. I think I hear it now.
For Ru
On commitment
I've been to a lot of weddings recently. And I've also seen a lot of dogs.
We live by a dog park and every day when I bike home from work I see them, big and small, black, brown, and white, terriers and mutts and pit bulls and collies and purebred poodles, French bulldogs and scruffy chihuahuas with legs like sticks.
I imagine Mitt Romney driving with his dog on the roof of his truck. I wonder if that dog sees the world the way I do: leery of what could happen with his owner at the wheel.
I remember the dogs I saw in Chile; emaciated, scrappy things wandering the streets.
I think of the dog my father broke out of the pound when he was younger than I am now, and how, years later, he stayed up all night on our lawn, cradling Tommy when there was nothing else he could do.
I think of what our dog, this hypothetical, imaginary thing we call aimlessly around the house, would do to fill long afternoon hours. I measure the height of things in our apartment to see if tails would knock them over. I worry about how long it would take to train her. There's a narrative for her forming in my mind. I plan for her the way others plan weddings. It seems like these are parallel choices: here you are, making a decision that will dictate who you spend your time with, and where, and how, and just what all that means, and there you are, welcoming a living, breathing, beautiful thing into your life, making space for it where maybe there wasn't before, learning its tricks, eccentricities, preferences, vocabulary. It seems like the kind of decision you labor over until it is made, and once you are sure, that yes, this is person you want and need by your side, and yes, this animal belongs nowhere else as much as it does right here, maybe then you learn to accept the things you can't predict will happen. Because they will happen, with or without him, with or without her, and who knows how much richer your life could or would be.
The metaphor stops there. People aren't dogs, though I like to imagine that they are. Dogs can't talk; they can't rub your back or buy you blood glucose monitors when you lose them (again). They can't make the kind of babies you might someday want.
But they sure are awesome. Dogs, that is.
Termite church
I noticed the church the first time a few weeks ago, midday on a Sunday, when the carillon bells were ringing and a ragtag crew was huddled under the patio awning. It has a beautiful steeple, elegant and sharp, its tones resonant and comforting amidst the slight chaos and confusion of downtown San Jose. That first Sunday I figured that people were gathering to pray, but then I noticed that many of the parishioners had that same skinny lean to them, and that some of them resembled the regulars who spend their nights in the public park across the street. I half expected to see a friar breaking bread, his head bald in the sunlight. I wish now that I had stopped walking and gone inside.
A few nights ago Ryan and I went walking and I noticed a thick blue fabric wrapped snugly around the steeple. It looked like a giant band-aid, a gauze so thick even the glass windows were smothered in its red and blue. As we drew nearer I saw that the entire church was cloaked in awful stripes, the telltale advertisements for pest control hanging loosely to the facade. It looked like God had spun a colorful spiderweb around a church and left it to catch flies.
"Is this a sign?" I asked.
"It's a sign that there's termites," Ryan said.
I wonder if they pray. We kept walking but my impulse was to turn back, to get up close, to zero in and see if they were inside, thousands of small, fluttering, invasive pests, huddling closely together, praying. How did they know? Did they know? What was it about that old, bitter wood that tasted better than the buildings across the street?
Even now, days later, I wonder what the inside of that steeple looks like, with thousands of creatures turning ever inward, and what would happen if one day a divine hand pulled back the fabric and let them loose.
Do you think they would go?
Baseball
We went to the Oakland Coliseum today to see the A's smash the Seattle Mariners. I believe they won because I spent the last two innings drawing Coco Crisp and Yoenis Cespedes as dogs. That, and they are professional ball players.
Sometimes I think the world looks better when you close your eyes and pretend everyone is just a big, barking animal. Then I open them and remember, oh yeah, that's not so far off. And what's better - we can both catch balls.
Authors & Illustrators for Children
This ad is brought to you by the lovely writers and artists of Authors and Illustrators for Children, a nonprofit co-founded by my aunt, April Halprin Wayland, writer, activist, poet extraordinaire.
My JDRF pitch
Every October my family and I raise money for the Juvenile Diabetes Research Foundation, a nonprofit whose funds go directly to research that affects the lives of people living with type 1 diabetes. If you've ever read this blog, or perchance glanced at the machine on my hip, you know why we do this. That song never changes. This year, instead of appealing to your pocketbook for my own benefit, I want you to shift your focus.
This year I want to raise money for JDRF to support the parents and caregivers of people with type 1. For decades type 1 diabetes was known as "juvenile diabetes" because it is typically is diagnosed in children and adolescents. Type 1 is autoimmune, which means that the body develops uber-powerful antibodies that destroy the islets of Langerhans -- those oh-so-special cells that create insulin. Insulin is the hormone that makes it possible for us to metabolize all the sugar we eat. It is what lets us use what we put in our bodies for energy. It is also easily destroyed by digestive enzymes, which means that for those of us who no longer make it, the best way for us to get the hormones we need is to inject them through the skin. The go-to method for treating type 1 is multiple injection therapy; depending on your age, size, metabolism, and the kind of insulin you take, you could be taking anywhere from one to five shots a day. An increasing number of diabetics take insulin through an insulin pump, an amazing little machine that requires daily upkeep. Not to mention testing your blood sugar, which must be done with minute lancets that pierce through the fleshy skin of your fingers.
This is a lot for a little kid to think about. I can only imagine what it must feel like for their parents, siblings, and caregivers.
I think about all the things my parents have done for me -- regular parent stuff, like making me dinner every night as a child, or teaching me how to assemble a tent, or shlepping across the state with my rowing team in high school -- and somehow it is all raised to the power of three when insulin gets involved. How they must have worried when I left the country - alone - not once or twice, but three times. What must have been going through their mind when I'd call them from somewhere far away because I'd lost my blood sugar monitor or gotten low at work or been denied coverage or gotten food poisoning and threw up my dosage. I remember the way my parents handled health insurance companies, and the graceful way they taught me to be unashamed for this thing that sidled its way into our lives.
I think about the kids I met at camp, many of them still too young or unprepared to give themselves their own injections. Somehow it was one thousand times harder for me to give them their shots than to take my own. I remember their parents at the end of the week: the ones that called to hash out dosages with camp nurses, the ones who took advantage of five days without carbohydrate counting to go on a little vacation of their own. What must that be like?
I think about my older brother, Josh, who years later is a fabulously popular high school teacher, and how he'd sit with me until I felt better, this big wonderful sensitive goofy person who innately knows to make the big things small again.
I think of my best friends growing up, who sat through my gigglefests whenever I got low, and quickly perfected the subtlest way of asking, "...Are you sure you don't need some juice?" And the reasonable, honorable way they taught me to see type 1 for what it is -- a thing as outside me as it is inside.
I think of my cousins and aunts and uncles and neighbors and grandparents, the ones who donate every year, who attend JDRF research meetings in other cities, who don't mind when I pass up the Christmas pie, but are ready with a slice in case I change my mind.
I think of my boyfriend, whose patience is a thing of wonder. A few weeks ago I was standing in front of the bathroom mirror, staring at my abdomen, which was decorated with a pump infusion set on one side and a continuous blood glucose monitor glowing on the opposite hip. Sometimes it just looks ugly to me. I asked him what he thought and he said, I can't even really see them anymore. They are a part of you, so I like them.
These are the people I want you to donate for. Or if you are these people - do it for yourself. There are millions of worthy causes worth your time and money, but few whose impact spreads quite as quickly as this one.
My family is raising money for the JDRF Walk to Cure Diabetes on October 7. To donate for our cause, visit our team page.
Thank you.
A moment
the perfect size dog
marshmallows
the Gobi desert
toyboattoyboattoyboat
every person she has ever loved, in consecutive order
the smell of iron
how her Oscar speech would start
why it's called Dr. Pepper
Calvin and Hobbes
her grandfather's face that day
And when others ask, this is what she claims to be thinking about:
the heat
the stock market
that crisis in another country
the circumference of the Earth
endangered whales
that sale at Macy's
the latest cover of the New Yorker
On the rare occasion that these things overlap, that's when she realizes she's hit a moment of truth. Either that, or she's found the perfect size dog.